european network for adrenal tumors

 

ens@t databases

ENS@T databases for ACC, APA, NAPACA and Pheo have been created through the work of the four ENS@T working groups who jointly agreed a core dataset for each tumour entity as a minimum work-up requirement. The ENS@T databases have been successfully established supported by the European Science Foundation (www.esf.org) through the Melbourne eResearch Group at the University of Melbourne (www.eresearch.unimelb.edu.au) and are open for data entry since early 2011. The ENS@T databases can be accessed through a unified, security-driven portal that allows targeted data upload and cross-database searching.

The database is available at: https://registry.ensat.org

All fully paid up ENS@T members can gain access with a unique login (please request your login by email to Anthony Stell: astell@unimelb.edu.au).

Registered users click here to download instructions on how to enter patient information.

The ENS@T databases offer the opportunity to register any new patient with an adrenal mass with a core dataset, which requires less than 5 minutes. In addition, associated biomaterial, surgery, imaging and pathology and clinical follow-up forms can be completed. We expect that this work will be considerably augmented to become a complete Virtual Research Environment (VRE) for adrenal tumour research through a recently awarded grant (FP7 ENS@T Cancer) supported by the European Union under the Framework 7 call.

This means that also biological readouts such as – omics data can be separately entered and linked to the anonymized clinical data. Furthermore, the ENS@T databases offer the opportunity to integrate e-CRFs of ongoing studies in adrenal tumours, eliminating the need for repeated data entry into multiple databases. We will update about any new developments as they happen.
  © ENS@T - European Network for the Study of Adrenal Tumors 2002 - 2012
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